Support and Resources

Lilly-Anne, age 10, and her mom, both living with achondroplasia.

Finding support

Many families find comfort, confidence, and practical help by connecting with other families living with achondroplasia. Advocacy groups, nonprofit organizations, and charities can help connect families to resources and emotional support. They can also help families feel like part of a strong community.

Lawson, age 4, living with achondroplasia, and his mom.

Advocacy groups

Growing Stronger Icon

Growing Stronger

Improving the quality of medical care for those living with dwarfism by supporting research.

Little People of America Icon

Little People of America

Founded in 1957, Little People of America (LPA) is the largest and longest-standing organization supporting people with dwarfism. Through a national network of districts, LPA provides support, education, and advocacy that reflect and celebrate the identities and lived experiences of people with short stature.

Little Legs Big Heart Foundation Icon

Little Legs Big Heart Foundation

Dedicated to empowering and supporting individuals with skeletal dysplasia and their families.

The Chandler Project Icon

The Chandler Project

Raising awareness of transformative research on achondroplasia and other skeletal dysplasias by supporting a global community and network of patients, parents, and caregivers seeking information.

Advocacy groups are provided for informational purposes.

Helpful resources

Download

Informational Brochure

Download this helpful brochure for information on life with achondroplasia.

Download
Download

Doctor Discussion Guide

This guide has questions that you may want to ask doctors or specialists within your child's healthcare team, and space to write answers.

Download

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